Hungry: Living with Prader-Willi Syndrome

Hungry: Living with Prader-Willi Syndrome

A teenage boy lives with an incurable genetic disorder characterized by low IQ, behavioral issues, and insatiable hunger.

Max Seidlitz is a 13-year-old boy living with Prader-Willi Syndrome, an incurable, rare genetic disorder that is characterized by insatiable hunger, behavioral issues and lower than normal IQ.

Using black-and-white photographs, audio interviews and video, this moving story (from Maryland’s Howard County Times Website, is a window into the life of Max and his father, Lon, his primary caregiver. Max’s life revolves around eating and meals. Due to Max’s constant hunger, Lon must lock up the kitchen between meals and keep Max busy with other activities. This touching piece includes interviews with Max and Lon and captures the remarkably close bond between the two of them.

Length: 5 minutes

Story: Steve Kelley
Photos, multimedia production: Maisie Crow